“flabby” dignity- an interpretative phenomenological analysis of gignity of woman with relapsing-remitting multiple sclerosis

  • Michaela Miertová
  • Juraj Čáp
  • Katarína Žiaková


Multiple sclerosis (MS) is progressive chronic disorder of central nervous system and the most common neurological cause of disability in the adults people (Rosiak & Zagożdż, 2017). More than 2.5 million individuals suffer from MS worldwide (Sharifi, Borhani & Abbaszadeh, 2016). The young individuals aged between 20 and 40 years are mainly affected. A higher frequency of MS is seen in women they are affected twice as often as men (Huang, Chen, & Zhang, 2017). Living with a chronic illness and uncertainty regarding the prognosis of MS disorder leads to extensive changes in the daily life (Sharifi, Borhani & Abbaszadeh, 2016). The diagnosis and the disease itself influence the dignity of people with MS; both have many devastating consequences in personal and social life, e.g. dependence on others in performing activities of daily living, functional limitations, depression, speech problems, unemployment, social isolation (Dehghnani, Dehghnan Nayeri, & Ebadi, 2018; Dehghnani, Dehghnan Nayeri, & Ebadi 2017; Bašić Kes et al., 2013). MS disorder threatens dignity, personal autonomy, independence, life planning and can potentially limit the achievement of life goals (Costello, & Kalb 2018). Individuals with MS have low self-esteem and low self-confidence, they have feelings of guilt and uselessness, and they feel stigmatization and rejection in social relations (Sharifi, Borhani & Abbaszadeh, 2016; Lohne et al., 2010).